Our actionable research integrates the science of thriving into the health care, education, and human services systems that directly impact the lives of children and families.
Child and Adolescent Health Measurement Initiative. Recommendations Roadmap for California Proposition 64 Expenditures: Advancing Healing-Centered and Trauma-Informed Approaches to Promote Individual, Family, and Community Resilience. In collaboration with a statewide advisory committee coordinated with the California Campaign to Counter Childhood Adversity (4CA). Johns Hopkins Bloomberg School of Public Health, Baltimore, MD. 2019.
Bethell C, Kennedy S, Martinez-Vidal E, Simpson L. Payment for progress: Investing to catalyze child and family well-being using personalized and integrated strategies to address social and emotional determinants of health. Washington, DC: AcademyHealth. 2018.
Bethell CD, Carle A, Hudziak J, et al. Methods to Assess Adverse Childhood Experiences of Children and Families: Toward Approaches to Promote Child Well-being in Policy and Practice. Acad Pediatr. 2017;17(7S):S51-S69.
Child and Adolescent Health Measurement Initiative (CAHMI). Report of the Social Determinants of Health Technical Working Group, Maternal and Child Health Measurement Research Network (MCHMRN). Published August 2018.
More resources for shaping health care systems and policy:
Child and Adolescent Health Measurement Initiative. Recommendations Roadmap for California Proposition 64 Expenditures: Advancing Healing-Centered and Trauma-Informed Approaches to Promote Individual, Family, and Community Resilience. In collaboration with a statewide advisory committee coordinated with the California Campaign to Counter Childhood Adversity (4CA). Johns Hopkins Bloomberg School of Public Health, Baltimore, MD. 2019.
A Roadmap to Behavioral Health: A Guide to Using Mental Health and Substance Use Disorder Services. Prepared by the Centers for Medicare and Medicaid Services. August 2019.
Bruner C, Johnson K, Bethell, CD. Resource Brief: Risk Stratification for Children in Medicaid: Achieving the Potential of Prevention. Prepared by the Child and Adolescent Health Measurement Initiative and InCK Marks. April 2019.
Child Well-Being and Adverse Childhood Experiences in the US. Academic Pediatrics. 2019;17(7):S1-S158.
Bethell, CD, Davis, MB, Gombojav, N, Stumbo, S, Powers, K. Issue Brief: A National and Across-State Profile on Adverse Childhood Experiences Among U.S. Children and Possibilities to Heal and Thrive. Prepared by the Child and Adolescent Health Measurement Initiative. October 2017.
Bethell CD, Blumberg SJ, Stein RE, Strickland B, Robertson J, Newacheck PW. Taking stock of the CSHCN screener: a review of common questions and current reflections. Acad Pediatr. 2015;15(2):165-176.
Bethell C, Forrest CB, Stumbo S, Gombojav N, Carle A, Irwin CE. Factors promoting or potentially impeding school success: disparities and state variations for children with special health care needs. Matern Child Health J. 2012;16 Suppl 1:S35-S43.
Bethell CD, Newacheck PW, Fine A, et al. Optimizing health and health care systems for children with special health care needs using the life course perspective. Matern Child Health J. 2014;18(2):467-477.
CBethell CD, Kogan MD, Strickland BB, Schor EL, Robertson J, Newacheck PW. A national and state profile of leading health problems and health care quality for US children: key insurance disparities and across-state variations. Acad Pediatr. 2011;11(3 Suppl):S22-S33.
More resources for children with special health care needs:
Bethell, Christina D. Experience matters: A view into the health and well-being of US children and families with autism spectrum disorder (ASD). Prepared by the Child and Adolescent Health Measurement Initiative in partnership with Autism Speaks under Grant #9039. April 2016.
Strickland BB, Jones JR, Newacheck PW, Bethell CD, Blumberg SJ, Kogan MD. Assessing Systems Quality in a Changing Health Care Environment: The 2009-10 National Survey of Children with Special Health Care Needs. Matern Child Health J. 2014. doi: 10.1007/s10995-014-1517-9
Zuckerman KE, Lindly OJ, Bethell CD, Kuhlthau K. Family impacts among children with autism spectrum disorder: the role of health care quality. Acad Pediatr. 2014;14(4):398-407.
Bethell C.D., Lindly O., Kogan M., Zuckerman K. (2014) Health Care Quality for Children: The Position of Autism Spectrum Disorder. In: Patel V., Preedy V., Martin C. (eds) Comprehensive Guide to Autism. Springer, New York, NY.
Zuckerman, K, Lindly O, Sinche B, Bethell C. Parental Development Concerns, Provider Response to Concerns, and Delays in Diagnosis for Children with Autism and Other Developmental Disorders. Journal of Developmental & Behavioral Pediatrics. 2014;35(2):S1-S1.
U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. The National Survey of Children with Special Health Care Needs Chartbook 2009–2010. Rockville, Maryland: U.S. Department of Health and Human Services, 2013.
Child and Adolescent Health Measurement Initiative (2012). “2009/10 NS-CSHCN: Prevalence of Specific Difficulties among CSHCN with Each Condition.” Data Resource Center, supported by Cooperative Agreement 1‐U59‐MC06980‐01 from the U.S. Department of Health and Human Services, Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau (MCHB). Available at www.childhealthdata.org, Revised 01/31/2012.
Child and Adolescent Health Measurement Initiative (2012). “2009/10 NS-CSHCN: Comorbidity of Conditions and Difficulties Among CSHCN.” Data Resource Center, supported by Cooperative Agreement 1‐U59‐MC06980‐01 from the U.S. Department of Health and Human Services, Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau (MCHB). Available at www.childhealthdata.org, Revised 02/01/2012.
Child and Adolescent Health Measurement Initiative (2012). “Exploring Functional Difficulties in the 2009/10 NS-CSHCN.” Data Resource Center, supported by Cooperative Agreement 1‐U59‐MC06980‐01 from the U.S. Department of Health and Human Services, Health Resources and Services Administration (HRSA), Maternal and Child Health Bureau (MCHB). Available at www.childhealthdata.org. Revised 2/7/12.
Phelps RA, Pinter JD, Lollar DJ, Medlen JG, Bethell CD. Health care needs of children with Down syndrome and impact of health system performance on children and their families. J Dev Behav Pediatr. 2012;33(3):214-220.
Bethell, Gombojav, Stumbo, et al. "Summary Comparison of Children with Chronic Conditions and Elevated Service Use or Need (CCCESUN NHIS Variable) and the CSHCN Screener (MEPS Linked). Prepared by theChild & Adolescent Health Measurement Initiative for the National Center for Complementary & Alternative Medicine Grant #1R21AT004960-01A2: Use and Impact of Complementary and Alternative Medicine among US Children. Published September 2012.
Strickland BB, van Dyck PC, Kogan MD, et al. Assessing and ensuring a comprehensive system of services for children with special health care needs: a public health approach. Am J Public Health. 2011;101(2):224-231.
Maternal and Child Health Bureau’s 6 Core Outcomes for CSHCN. Prepared by the Child and Adolescent Health Measurement Initiative. November 2011.
Turchi RM, Berhane Z, Bethell C, Pomponio A, Antonelli R, Minkovitz CS. Care coordination for CSHCN: associations with family-provider relations and family/child outcomes. Pediatrics. 2009;124 Suppl 4:S428-S434.
Measuring Medical Home for Children and Youth: Methods and Findings from the National Survey of Children with Special Health Care Needs and National Survey of Children’s Health. Prepared by the Child and Adolescent Health Measurement Initiative for the National Center for Health Statistics. May 2009.
U.S. Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau. The National Survey of Children with Special Health Care Needs Chartbook 2005–2006. Rockville,Maryland: U.S. Department of Health and Human Services, 2007.
Bethell CD, Fiorillo J, Lansky D, Knickman J. Online Consumer Surveys as a Methodology for Assessing the Quality of the U.S. Health Care System. J Med Res. 2004.
Bethell CD, Read D. The Children with Special Health Care Needs Consumer Quality Measurement Module. Prepared by the Child and Adolescent Health Measurement Initiative and the Foundation for Accountability. May 2001.
Bethell CD, Garner AS, Gombojav N, Blackwell C, Heller L, Mendelson T. Social and Relational Health Risks and Common Mental Health Problems Among US Children: The Mitigating Role of Family Resilience and Connection to Promote Positive Socioemotional and School Related Outcomes. Child Adolesc Psychiatr Clin N Am. 2022 Jan;31(1):45-70.
Ghandour, R.M., Moore, K.A., Murphy, K. et al. School Readiness among U.S. Children: Development of a Pilot Measure. Child Ind Res. 2019;12:1389–1411.
Bethell CD, Gombojav N, Whitaker RC. Family Resilience And Connection Promote Flourishing Among US Children, Even Amid Adversity. Health Aff (Millwood). 2019;38(5):729-737.
Paschall K, Moore KA, Pina G, Anderson S, Child Trends. Comparing the National Outcome Measure of Healthy and Ready to Learn with Other Well-Being and School Readiness Measures. Child Trends; 2020.
More resources to shape educational systems and policies:
Bethell CD, Carle A, Hudziak J, et al. Methods to Assess Adverse Childhood Experiences of Children and Families: Toward Approaches to Promote Child Well-being in Policy and Practice. Acad Pediatr. 2017;17(7S):S51-S69.
The Child and Adolescent Health Measurement Initiative: 4 Essential Facts about Lifelong Health, School Success and Adverse Childhood Experiences among California’s Children. www.cahmi.org. Published April 2, 2014.
Bethell CD, Newacheck P, Hawes E, Halfon N. Adverse childhood experiences: assessing the impact on health and school engagement and the mitigating role of resilience. Health Aff (Millwood). 2014;33(12):2106-2115.
Bethell C, Forrest CB, Stumbo S, Gombojav N, Carle A, Irwin CE. Factors promoting or potentially impeding school success: disparities and state variations for children with special health care needs. Matern Child Health J. 2012;16 Suppl 1:S35-S43.